My dreams, hopes and aspirations.

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My mother has always taught me to set my goal and chase it, quitting is for those without drive or a strong enough reason to succeed. I’ve watched mum manage three businesses at the same time as looking after the house (with the help of my stepdad), as well as fly me all over the country looking for the next potential ‘cure’. She has always been one of my biggest inspirations. She taught me that the arthritis is a part of me but at no stage is it ever to control me. It is based on this strength and my need to help others with disabilities.

It is from this need that the idea for EnableDisabled.com was born. I have been working hard to build a website that is designed to assist those with disabilities, their carers and the frail-aged by providing up to date information about services that are available in their area (or online) which may improve their quality of life. The internet is drenched with misinformation and it is so easy to become caught up in ‘hype’ when you are desperate for answers. Having a disability myself I am all too familiar with this scenario.

To date, I have not been able to access any Government funding. I’m not sure the Government was ever contemplating anything as complex as this website would be created, so it has never fit neatly enough into the boxes required to access any funding. So far I have had to source funds myself and will soon be launching a crowdfunding campaign to help get EnableDisabled.com across the line.

If you would like more information, or to receive updates please send me an email EnableDisabled@outlook.com.

I look forward to having you with me while we make this dream a reality!

Creating an anti inflammatory garden

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I have never had any interest in gardening until I met Mick. The only plant i had managed to keep going was a succulent (which is still taking over much of mum’s garden). My nana (who was born with not just a green thumb an entire hand!) has been guiding me along the way as I experimented over the last 6 years with different things. My successes to date are pineapple, paw paw, beans, cauliflower, pumpkins and chillies.

Now that I’m going through one of the longest flare ups I can remember I’ve started researching what plants are anti-inflammatory, that can actually be grown here on the Sunny Coast and which may be a bit tougher to withstand me ‘killing them with kindness’, as my nana so politely  put my garden skills (or lack there of).

So I’ve discovered there are quite a few plants that have anti inflammatory properties and the ability to reduce free radicals therefore assisting the body to repair itself.

According to an article 7 Summer Foods to Fight RA, “The main food groups that will help reduce inflammation are the well-known antioxidants — vitamin C, E, beta carotene — flavonoids, and polyphenols” and it is beneficial to eat fruits and vegetables from every colour of the rainbow. The article also goes on to say that calcium depletion can also cause issues with sleep so I’ll look to factor in calcium rich sources into the garden as well.

So from my research the following fruits and vegetables are worth having in my garden.

  • Peaches
  • Cherries
  • Blueberries
  • Turmeric root
  • Ginger
  • Celery
  • Parsley
  • Watermelon
  • Mango
  • Pineapple (from experience pineapples are finicky and take around 4 years to grow)
  • Beans
  • Garlic Chives (apparently very high in Vitamin C – often a vitamin that arthritic people lack)
  • Lychees

We might start with that list and expand from there. I already have 4 lychee trees going strong, apparently they produce 200 kg of fruit each season if they are cared for properly (which would be handy as they sell for between $7 and $11 a kilo here when in season- it may help me fund the rest of the project).

Time to start researching the best times to plant and go from there! Will post my progress 🙂

Now I just have to find someone who can teach me how to cook fish!

Lizzy is such an inspiration!

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Please click on the link below to hear Lizzy’s story and help her achieve her dreams! http://www.news.com.au/technology/online/worlds-ugliest-woman-faces-up-to-online-bullies-in-antibullying-kickstarter-campaign/story-fnjwnhzf-1226936297639

Chiro’s that Care

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Having had arthritis for so many years, I’ve had the displeasure of meeting so many rogue operators who really couldn’t care about a patients condition, they’re only in it for the money.

I’m so happy to pass on that I have found a chiropractor that truly cares about his patients! I sent his office an email at 8.30 last night detailing my situation. The pain in my back was very severe and I’ve hardly slept since 1am Wednesday morning. Allan rang me at 6.30 this morning telling me he had an appointment available at 7.45am today if that was ok. Yes, Yes, absolutely yes!

He carefully adjusted all sorts of things this morning, and while I’m still in pain I can at least move! I have another appointment in a fortnight just in case I need it, but he has recommended a lot of walking and not much sitting for the rest of the day. 

If you to want to see a Chiro that Cares and you live on the sunshine coast please give Allan Lambert at Woombye chiropractic a call on 07 5442 2144.

THIS IS NOT A SPONSORED POST

Budget Blues

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Last night the Federal Treasurer Joe Hockey handed down the Coalition’s first budget in seven years and for those of us already in pain it looks like we are about to feel it that much more each time we go to the doctors, pay for a prescription or have an x-ray or blood test. Here’s the breakdown:

Let’s start with the bad news.

  • A $7 ‘patient contribution’ will be charged to patients each time they visit their GP. Concession card holders and children under the age of 16 will only have to pay the contribution fee for their first 10 visits each year. It will be up to the doctor whether or not they charge the patient the $7 fee, if the GP chooses not the charge, they won’t receive their $6.20 bulk-billing consultation fee from the Government.
  • The $7 ‘patient contribution’ fee will also apply to out of hospital imaging and pathology services.
  • From 1 July 2015 a $5 fee will be applied for each prescription you have filled. This fee will apply to any medication currently subsidised by the Government’s Pharmaceutical Benefits Scheme. For those who hold a concession card the fee will be $.80 cents per prescription. For example if you are currently taking the drug infliximab (Remicade) non-concession card holders will pay $41.90, concession card holders will pay $37.70 (instead of the current $36.90).
  • If you are on the Disability Support Pension (DSP) and under the age of 35 and first began receiving the pension between 2008 and 2011 you will be required to undergo stricter eligibility testing and may be required to join Work for the Dole, job search, education or workplace training schemes.

There is some good news:

  • A Medical Research Future Fund in excess of $20 billion dollars will be created from the Government’s savings. The headlines are screaming that this may lead to an Australian being the one to cure Cancer, Alzheimer’s or heart disease. Seeing as how Arthritis affects millions of Australians I am hoping that some of the $20 billion dollars (that we tax paying arthritic Australians are contributing the fund) will also be used to fund research into curing arthritis too!

I’m all for getting the budget back to surplus but I don’t believe that politicians fully appreciate how much a disability eats away at our budgets when you factor in:

  • Specialists
  • Time off work due to illness (or trips to specialists – they don’t work weekends!)
  • Cost of medication (generally required so that we can go to work)
  • Soon to be cost of testing – to ensure that the medications are not causing more problems, and that the disease is under control
  • Cost of other treatments such as physiotherapy, acupuncture, chiropractor, bowen therapy or massage (if that’s what it takes to help you feel better) – these practitioners also generally need to be seen during the working week as most don’t work weekends!

I’m keen to know your thoughts on this issue and how this budget will affect you. Please feel free to contact me at ArthriticEntrepreneur@gmail.com

Confused

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Is it any wonder that there are so many accidents with medications? I’ve been on doxycycline (an antibiotic) for nearly a year now to help control the rosacea. Recently the pharmacist started to stick warning stickers on the box which I found amusing (I think that’s the word I’m after).

Photo 1 shows the sticker the pharmacist put on the box stating ‘Do not take dairy products, antacids, iron or calcium supplements within two hours of each dose of this medicine’. Fair enough, I can do that. However when I turn the box over, the pharmaceutical company have printed something completely different as shown in Photo 2.

‘DIRECTIONS FOR USE: AS PRESCRIBED BY PHYSICIAN  …..  Take the Doxycycline Sandoz tablets in the morning with a glass of milk or food’. Please correct me if I’m wrong but isn’t milk a dairy product?

Doxy 3 Doxy 2

Easing the Pain

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On Ten Eyewitness News last night they had a news story about ‘Arthritis’. I’m pretty skeptical about all news stories that use the umbrella term arthritis as (in my opinion) they are trying to real as many arthritis sufferers in to watch their program as possible by not clarifying whether the story is about a particular type of arthritis, even a breakdown of whether it was a story about degenerative arthritis or inflammatory arthritis would be great, as most stories seem to be about osteoarthritis. No use to me!

The story last night was about Rheumatoid Arthritis, and possible treatment using the ‘Thundergod Vine’ in combination with other treatments such as methotrexate. Click here to view the video.

Before you rush out and try this for yourself I strongly advise speaking to your treating doctor about possible drug interactions and whether this treatment is right for you. As with everything there are side effects. The following articles may provide some more information but please discuss with your doctor or treating physician first.
Thundergod Vine by WebMD
Chinese ‘Thunder God’ Herb Works as Well as Pain Drug by thedoctorschannel.com